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Rank: Newbie  Groups: Registered
Joined: 6/2/2011 Posts: 3 Location: kent
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Hello Everyone,
My name is Sophie i am 20 years old and got diagnosed with RA 3 weeks ago! I was rather annoyed but i think im slightly getting my head around it all lol!
It was a bit of a shock as we were unaware of people in my family with RA, although my Grandmother was adopted and died way before i was born so we have no information of her side.
Im unsure of alot of things to do with RA as its only been 3 weeks, so any information for me would be really helpful.
It has come at an inconvienient time (well i suppose it is never going to be convinient) im just finishing my first year of a degree so am bogged down with lots of work!! which didnt help me feel very great about it as i dont know how it will affect my future career i have chosen, which is working with children but hey ill cross that bridge when it come to it :)!
I have started taking Methotrexate so we shall see what happens with that one! Reading all the possible side affects was a bit of a shocker!
Well that is me, it would be lovely to have some advice or information, guidence etc!
Kind regards Sophie :) x
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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 Hi Sophie. You poor love. I am so sorry you have RA especially as you are so young. My name is Sheila I am 60 and I have been diagnosed for 9 years. I hope you have a good rheumatology team where you are. This is very important. You will find them very helpful. I have found mxt (methotrexate) has worked very well for me. Now, because I have been on it a long time I have to move on to something else but you will start to feel much better soon. I would say you need 6 weeks before you start to feel the benefit of it but of course it differs with each individual. You have made a great decision to come on the forum as we can all help you and give you advice on various things that will crop up with RA. Of course, we are not medical people and can only help on practical advice and share our experiences. Always check with your rheummy nurse about anything you are not sure about. This is a great place to share, ask questions, have a moan or just generally chat to someone who knows what you are going through. You will find that people, on the whole, don't understand RA so you need us to talk to and I hope you do. I want to wish you all the best with your degree. It would be a good idea to talk to your lecturers about your condition, there may be allowances they can make for you if your hands are too sore on some days. I have 2 sons in there 20s who have recently completed their degrees. If you need any help give me a shout I am sure they will be willing to help with advice. What is your degree? Please post again. Love Sheila x
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Sophie Hello and welcome to the forum, really good you have found us on here. I think Sheila's post has summed it all up about, you will get so much support and advice. I have been on methotrexate for a few weeks now, and pleased to say that I have had very little side effects and I know it is gold standard for RA so I hope all goes well for you. I know a lot of people are on it and they hardly know they have anything wrong, so all good stuff Lots of best wishes to you, and please keep in touch. Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Sophie,
i am so sorry to hear you've been diagnosed at such a young age,
i think the first few months really hit hard ... there's so much to take in and to come to terms with.
as Sheila says i hope you have a good Rheumatology Department because they are worth their weight in gold. also that you have a contact number for your Rheumy Nurse, i find mine invaluable.
i would also suggest keeping a diary or notes in these early days of how you are feeling, because apart from the pain your emotions are all over the place ... this will be a good reference point for when you next see your Consultant.
yes the Methotrexate side affects can be scary ( i worked myself up into such a lather i lost over half a stone in a week with the stress of it all ) but hopefully you will build up gradually and not get any.
i was told it takes about 12 weeks to see if it's working for you ( sadly it hasn't for me a year on ) so i am due to start on a new drug shortly.
also perhaps you could show some RA literature to your Lecture's as well, as it really is an unknown condition for most, to be honest i didn't know much about it when i was diagnosed.
good luck with your Degree,
and do keep posting i certainly have learned so much from this Forum and don't feel so alone.
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Sophie,
Welcome to the forum but so sorry you have been diagnosed at such a young age. It's hard enough doing a degree without having RA !
I am 61, married with one daughter (22). I have had RA for 10 years and now take mtx and humira. Yes, the possible side effects of mtx are scarey but you may not get any of them. You will also be closely monitored wit regular blood tests so that any problems can be picked up quickly. Good luck with the mtx, I hope it works really well for you. Looking forward to getting to know you.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hi Sophie Welcome from me.. Im Ceri 43 diagnosed 2 years ago. Awful that youve got this horrible thing at your age but youve done the right thing joining us..I hope the mtx kicks in soon and they get you on the right meds. Good luck and keep posting. Love Ceri x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Sophie, and welcome to the forum. I`m so sorry you have been diagnosed with RA at such a tender age - that must be really tough. Methotrexate often works really well, so hopefully it will do the trick for you and bring the RA under control. If not, there are lots of drugs out there now, and one of them will have your name on it. I`m Kathleen, aged 60, diagnosed over 5 years ago, and currently on humira. Take care, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 5/12/2011 Posts: 124 Location: Wilts, nr Stonehenge
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Hi Sophie,
I'm Tracy, 40 yrs old (and feeling it at the mo lol), was diagnosed feb last yr. The specialists say that the younger you are diagnosed the better, I hope that's true.
Welcome to the site, I joined this week and the lovely Ladies on here are so welcoming and warm, I feel very supported already. Be wary of the fatigue and listen to your body, get to know it.
I started on mxt last June and have no side effects what so ever, so good luck with not getting any. Frustration, fatigue and denial have been the hardest for me to deal with as well as the pain obviously. I started taking anti-depressants about 8 weeks ago after refusing them for as long as I could. Don't be ashamed of accepting all help Sophie.
Good luck chick, thinking of you, keep posting and good luck with your Degree. The new DDA will help you with Education and special arrangements, go and see your Uni welfare officer/Tutor.
Trace xx
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Rank: Advanced Member
Groups: Registered
Joined: 9/9/2010 Posts: 77 Location: Hampshire
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Hi Sophie Welcome from me too. My name is Deborah, I'm 46 and was diagnosed last September. This is a very welcoming forum and its great to be able to post knowing that everyone understands. Take care Debs x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Sophie and welcome from me too. Sorry you have RA, I always feel sorry for you younger ones, but there is lots of good support and advice on here. I hope you feel better soon. Youve had loads of good advice here, so good luck BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Hi Sophie Welcome to the forum. A great place to be for support and information; lots of folk, lots of knowledge and a wealth of tried and tested experiences! Glad you have found us and NRAS! NRAS produce loads of literature about living with RA, treatments etc. Two you may find useful are 'Newly diagnosed' and 'Managing well - Living with RA', do order some if you haven't already done so. I'm Lyn, married to Mike, we have four children (well I call them children but perhaps it's time to stop!), Abby 23, Ian and Jake 18, and Louis 16. All four in various stages of education! We live in Thornton Cleveleys in north west Lancashire. I was diagnosed with RA 23 years ago and have since run the gamut of medication (although more options are popping up now and again thankfully!) and had lots of surgical procedures along the way. Currently on Enbrel, Prednisolone and Naproxen, (I'm about to restart methotrexate after a break) and a wagon load of pain killers! But heyho... Pleased to hear that you have quickly been started on methotrexate which is the gold standard drug used in the treatment of RA and has given many people excellent results. I hope it works well for you. Look forward to getting to know you Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 4/20/2010 Posts: 153 Location: Kent
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Hi Sophie Sorry to hear that you have been diagnosed at such a young age. My name is Louise, Im 36 & was diagnosed with RA just over two years ago. Welcome to the forum you really will get a lot of support on here, nras is brilliant for support and advice, I've called them lots of times, they are willing to listen and help no matter how long you are on the phone for. Hope you are getting support from your rhemmy team too. Hope you feel better soon. Take Care Lou x I love people who can make you smile even when you do not feel like smiling. x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hello sophie!
I was 20 when I was dx too.
I am now 35 and am happy to say managed to teach primary school children for 9 yrs even though I developed severe RA.
All in all had a pretty exciting life with some ups as well as downs.
What meds are you on?
I am on abatacept right now.
I am on facebook- if you look on the NRAS page and find Jenni B-l on there thats me!
Look forward to "chatting"
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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A big welcome from me Sophie
Sorry that you have RA at such a young age. I do hope that you have a good support unit with Hospt and GP.
I am 57 and diagnosed 3 yrs ago. DMARDS been on 3 and all failed. Started Humira 2 days ago - fingers crossed
Keep us updated you should find this forum great for info, and moans and all general questioning
Keep posting
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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A big welcome from me Sophie
Sorry that you have RA at such a young age. I do hope that you have a good support unit with Hospt and GP.
I am 57 and diagnosed 3 yrs ago. DMARDS been on 3 and all failed. Started Humira 2 days ago - fingers crossed
Keep us updated you should find this forum great for info, and moans and all general questioning
Keep posting
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 11/20/2010 Posts: 244 Location: Cornwall
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Hi Sophie, A belated welcome from me, I've been a bit preoccupied with myself recently! It's a bit of a shocker when first diagnosed I remember it well, remember they have to list all the possible side effects on the info stuff, we're all different and react differently to these drugs at different times. But the percentages are very good and most people do very well on MTX, don't be too impatient though, I was, and don't expect too much too quickly, I did, better to enjoy the positives when they come and they will come. Take care Sara x
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010 Posts: 384
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Hi Sophie,
Welcome to the forum, you will get so much advice from people on this site, it was a great benefit to me when diagnosed last year.
I am on 25mg MTX and apart from feeling a little tired after taking it for a couple of days I have had no other side effects. At first I used to feel slightly nauseas but I don't even get that now, so fingers crossed you will be ok.
Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Sophie
And a very belated welcome from me too.
The forum has been a lifesaver for many of us as there is always someone to talk to and answer questions. Many of us try to get together one weekend each year, and this is a great way of making new friends.
I'm really sad to hear you have been diagnosed so early in life, but I'm sure Jenni will give you loads of support and encouragement.
I'm 68, married to Steve and have one daughter Lucy, a great s-i-l and 2 wonderful grandkids.
Look forward to getting to know you.
Love Jeanxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 11/26/2010 Posts: 71 Location: London
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Hi Sophie,
Another late 'welcome' here. So sorry to hear you've joined our 'club'. I'm 34 and was diagnosed last Autumn, it's such an impact on life and hard to get your head around but the forum is great for support, advice and a place to have a good complain when you need to.
It's great you're on mtx so quickly, I hope it helps. Do make sure your uni knows how much this can impact and gives you extra time etc. I've somehow managed to do 2 degrees with kidney disease and am hoping to do a PhD with RA too - not on RA though! So it's amazing what can be done with a lot of hard work and positive thinking.
Look forward to getting to know you on here,
Vicky xx
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